We have our son back, please wash your hands!!

mjheathcote

Centenary Club
Messages
9,038
Today, is the first day without seeing an hospital, and the first time I feel I can post about the last 2 weeks.
Just over two weeks ago my 8 year old son, actually on his 8th birthday, was taken to A&E with him passing blood in his poo, that continued for 3 days every 15 minutes 24/7.
In that time he was transferred to three different hospitals, Huddersfield, Halifax, and Leeds.
Eventually after 3 days the results came back he had ecoli 0157 poisoning.
On the fourth day after he was discharged to recover at home, a blood test in the afternoon taken at Halifax to check progress, gave us the news that he had developed HUS and his kidneys where failing, so he was rushed back to Leeds.
At that point it could have gone two ways, unfortunately, it went the wrong way, the 5%, the last case they had in Leeds in the 5% being 3 years ago, and over the last two weeks he has had three dialysis sessions and two emergency blood transfusions. There is no medicine/antibiotics for ecoli poisoning. The Doctors and nurses have been great, however we were not happy with an 'emergency' blood transfusions that was delayed 12 hours due to staff shortages over a weekend, and a drip that was intended for someone else, stopped after 5 minutes when they realised.
He is however now back at home, having been released on Friday, now recovering with all his systems slowly recovering. A blood check back at Leeds yesterday reported progress being made and they are happy with his recovery. Those that have seen him at Northern meets will know he is of lean build, with no fat to loose, and after eating very little for the past two weeks, he now needs fattening up, which he is making good progress. His blood count is lower than normal, so he is a little pale, but that will also get better naturally over the next few weeks.
Everybody has been involved, The GP who initially diagnosed him as having a virus (which it was not) a few days before the A&E visit, and the Environmental Agency. Fortunately no one else has been effected, and no idea as to the source.
So today, is the first normal day for us, and so happy to have our son back home on the mend.
It has been two weeks we wish no parent should ever experience.
Can I please stress to everyone the importance of hand washing, especially those with little ones, and consider being a blood donor.
Thanks.
 

Felonious Crud

Administrator
Staff member
Messages
21,180
Jeez, Mike, that's a bit of intense time. Glad you've got him back. Very best wishes for a continued and speedy recovery.
 

2b1ask1

Special case
Messages
20,272
Wow, brings it all into perspective, glad he is on the mend, that is a sorry tale of cockups along the way and shows the cracks in the overstretched NHS. Let's hope his kidneys are able to recover fully in the long term.
 

Contigo

Sponsor
Messages
18,376
My sister went through it with both her two boys after they had Ecoli 0157 and developed HUS. The eldest made a full recovery but the youngest lost kidney function and she donated a kidney to him. It's been **** for them all :(
 

mjheathcote

Centenary Club
Messages
9,038
Thankfully, throughout the 2 weeks his kidneys did not shut down completely, his wee looked like pink squash, but as they said at the time, its still wee.
In the immediate short term he will be having regular blood tests until all back to normal, and then a blood test every year for the rest of his life, for there is a risk now of kidney problems in later life.
 

mjheathcote

Centenary Club
Messages
9,038
My sister went through it with both her two boys after they had Ecoli 0157 and developed HUS. The eldest made a full recovery but the youngest lost kidney function and she donated a kidney to him. It's been **** for them all :(

So sorry to hear that but hope that her youngest has now recovered with the help of her donated kidney.
 

CatmanV2

Member
Messages
48,789
Glad it's turning out well eventually, Mike.

I started donating blood when I was a biker, and it's something that I hope everyone at least considers.

I now donate platelets every month or so. Turns out that due to a rarish set of conditions, I'm a universal donor so my platelets can be used for in utero platelet transfusion. Who knew?! They text me every time my donation gets issued. It make one feel all warm and fuzzy.

C
 

allandwf

Member
Messages
10,994
So glad he's on the mend. Been a blood donor for years, though work pattern interferes sometimes. Everyone should consider it, it only takes an hour or so out of your day.
 

redsonnylee

Member
Messages
1,549
My mum was a midwife before retiring so know the importance of clean hands. Can't imagine the stress and worry you've had but pleased to hear he is recovering now. Ive been a blood donor for over 20 years now and carry my card when traveling the UK just in case there's an urgent need.
 

rockits

Member
Messages
9,172
Crikey, sorry to hear that Mike. Glad he is moving forward now & hopefully will get back to somewhere near normal soon.

It is a patents worst nightmare & one we all seem to have experiences of to varying degrees some more than others. Anything we can do you only have to ask. I'm sure I speak for many on here.

It is a hard feeling sitting, watching helpless wishing it was you. I like to think it as character building & will make him a strong and unique individual. A valuable asset and attribute in my book.

How do you think he contracted it?
 

alfi boy

Junior Member
Messages
114
Thankfully our little ones are more resilient than we realise, wish him well and you a good nights sleep.
 

Trev Latter

Member
Messages
1,213
What an awful thing to go through for all of you. Here's hoping for a speedy recovery and back to normal as soon as possible. All the best.
 

highlander

Member
Messages
5,223
A terrible time indeed for you all Mike but sounds like you have turned the corner. Thoughts and wishes.
 

Evo Cymru

Member
Messages
688
Feck - sounds awful - can't imagine what you must have gone through! Wishing him a speedy recovery!
 

midlifecrisis

Member
Messages
16,229
Sorry to read this Mike, I've been a blood donor off and on for a few years and am also on the register for bone marrow should I match someone. Hope he makes a full recovery quickly.
 

Wack61

Member
Messages
8,793
That is bad news Mike , I really hope he makes a full recovery, is there any investigation as to where he might have caught it.